Videos that support our cause:
https://www.youtube.com/watch?v=KTb38tZYu3o
The above video is an exemplary view into the average family in which one of the members has Hallermann-Streiff syndrome. The glimpse of the family dynamics is anecdotal to our belief that Hallermann-Streiff truly does affect the family as well as outside social circles. Please take the time to watch this video so that you can better understand the outlying affects of this disease.
____________________________________________
https://vimeo.com/41385502
This video is a great source for those who wish to see how much those with Hallermann-Streiff have to undergo physically. Hospitals, doctors, and ambulances are on speed dial; the implications are great. Specifically, we are introduced to Kish in this video, who has been rushed to the hospital by ambulance over 20 times, and has even had to be air lifted. Hallermann-Streiff, as exposed in this video, incorporates a harrowing reality of what these victims have to endure.
____________________________________________
https://www.youtube.com/watch?v=AM_HPGeOwX4
One of our goals is to promote the connection and interaction of those who have Hallermann-Streiff. This video shows us how encouraging another person with the same conditions/experiences can be. Even though the victims in this video are younger, we can see the innocent joy of the toddler-- he has finally connected with someone like him!
____________________________________________
These videos provide visual insight to how life is for those with and around victims of Hallermann-Streiff syndrome. Sadly, Hallermann-Streiff does not have much information online, signifying just how important it is to raise awareness. Google Hallermann-Streiff and click on the videos tab. There will be six tiny pages, and many of those are inappropriately brought up, as many of them do not have to do with the disease. Please, take the time to share the few videos that are available, and post them to your social media page or email them to a friend. Lets be one click closer to raising Hallermann-Streiff awareness so that society can view not only this specific condition, but many others as well. Only then can society respond and act in a right way towards those with handicaps.
Other Articles:
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3778780/
http://www.webmd.com/children/hallermann-streiff-syndrome
http://www.rightdiagnosis.com/h/hallermann_streiff_syndrome/intro.htm#whatis
http://archopht.jamanetwork.com/article.aspx?articleid=626151
http://www.pediatriconcall.com/Journal/Article/FullText.aspx?artid=398&&tid=&imgid=&reportid=240&tbl
http://www.tandfonline.com/doi/abs/10.3109/13668257909018795#preview
http://adc.bmj.com/content/77/2/183.9.full
http://www.scopemed.org/?mno=46181
http://www.dovepress.com/hallermannndashstreiff-syndrome-with-severe-bilateral-enophthalmos-and-peer-reviewed-article-OPTH
http://www.madisonsfoundation.org/index.php?option=com_mpower&task=disease&diseaseID=421
http://www.malacards.org/card/hallermann_streiff_syndrome
http://pubs.rsna.org/doi/abs/10.1148/86.1.77
http://www.whonamedit.com/synd.cfm/1767.html
https://www.rarediseases.org/rare-disease-information/rare-diseases/byID/498/viewFullReport
http://www.freepatentsonline.com/article/CRANIO-Journal-Craniomandibular-Practice/192588581.html
http://jbjs.org/content/57/7/1002
https://www.myactivehealth.com/hwcontent/content/nord/nord498.html
http://www.wellness.com/reference/conditions/hallermann-streiff-syndrome
http://www.clarksnutrition.com/ns/DisplayMonograph.asp?StoreID=2691B1FE187D41ACB869A85CA5957A0A&DocID=condition-hallermannstreiffsyndrome
http://disorders.eyes.arizona.edu/disorders/hallermann-streiff-syndrome
http://omicsonline.org/scientific-reports/srep245.php
https://www.youtube.com/watch?v=KTb38tZYu3o
The above video is an exemplary view into the average family in which one of the members has Hallermann-Streiff syndrome. The glimpse of the family dynamics is anecdotal to our belief that Hallermann-Streiff truly does affect the family as well as outside social circles. Please take the time to watch this video so that you can better understand the outlying affects of this disease.
____________________________________________
https://vimeo.com/41385502
This video is a great source for those who wish to see how much those with Hallermann-Streiff have to undergo physically. Hospitals, doctors, and ambulances are on speed dial; the implications are great. Specifically, we are introduced to Kish in this video, who has been rushed to the hospital by ambulance over 20 times, and has even had to be air lifted. Hallermann-Streiff, as exposed in this video, incorporates a harrowing reality of what these victims have to endure.
____________________________________________
https://www.youtube.com/watch?v=AM_HPGeOwX4
One of our goals is to promote the connection and interaction of those who have Hallermann-Streiff. This video shows us how encouraging another person with the same conditions/experiences can be. Even though the victims in this video are younger, we can see the innocent joy of the toddler-- he has finally connected with someone like him!
____________________________________________
These videos provide visual insight to how life is for those with and around victims of Hallermann-Streiff syndrome. Sadly, Hallermann-Streiff does not have much information online, signifying just how important it is to raise awareness. Google Hallermann-Streiff and click on the videos tab. There will be six tiny pages, and many of those are inappropriately brought up, as many of them do not have to do with the disease. Please, take the time to share the few videos that are available, and post them to your social media page or email them to a friend. Lets be one click closer to raising Hallermann-Streiff awareness so that society can view not only this specific condition, but many others as well. Only then can society respond and act in a right way towards those with handicaps.
Other Articles:
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3778780/
http://www.webmd.com/children/hallermann-streiff-syndrome
http://www.rightdiagnosis.com/h/hallermann_streiff_syndrome/intro.htm#whatis
http://archopht.jamanetwork.com/article.aspx?articleid=626151
http://www.pediatriconcall.com/Journal/Article/FullText.aspx?artid=398&&tid=&imgid=&reportid=240&tbl
http://www.tandfonline.com/doi/abs/10.3109/13668257909018795#preview
http://adc.bmj.com/content/77/2/183.9.full
http://www.scopemed.org/?mno=46181
http://www.dovepress.com/hallermannndashstreiff-syndrome-with-severe-bilateral-enophthalmos-and-peer-reviewed-article-OPTH
http://www.madisonsfoundation.org/index.php?option=com_mpower&task=disease&diseaseID=421
http://www.malacards.org/card/hallermann_streiff_syndrome
http://pubs.rsna.org/doi/abs/10.1148/86.1.77
http://www.whonamedit.com/synd.cfm/1767.html
https://www.rarediseases.org/rare-disease-information/rare-diseases/byID/498/viewFullReport
http://www.freepatentsonline.com/article/CRANIO-Journal-Craniomandibular-Practice/192588581.html
http://jbjs.org/content/57/7/1002
https://www.myactivehealth.com/hwcontent/content/nord/nord498.html
http://www.wellness.com/reference/conditions/hallermann-streiff-syndrome
http://www.clarksnutrition.com/ns/DisplayMonograph.asp?StoreID=2691B1FE187D41ACB869A85CA5957A0A&DocID=condition-hallermannstreiffsyndrome
http://disorders.eyes.arizona.edu/disorders/hallermann-streiff-syndrome
http://omicsonline.org/scientific-reports/srep245.php